About Me

My photo
I am 26 years old and I have dealt with systemic lupus/scleroderma since I was 12 years old (that was my date of diagnosis, but I was sick much longer). I try to use my skills of writing and other artistic ventures to spread the word about chronic pain and what it's like to be really sick- and not look like it at all! From the outside, I look like any other single, young mother. Trendy clothes, makeup, frazzled nerves, and usually a cup of coffee in one hand and my toddlers grip on the other hand! But, on the inside, under all the fashionable fixings, it is a whole different story! This blog is my chance to tell that story, show the pictures, and hopefully help others to not be so quick to judge.
Powered By Blogger

Saturday, December 12, 2009

What's up on 12-12-09

     I woke up this morning wishing that I was not the only grown up in the house; it was freezing cold, even my little boy Jeremiah was cold under the covers. But, little boys can't (and shouldn't) reach thermostats, so I ended up having to get up and get the warm going.
      I put my feet on the floor and it felt like someone had dropped me (repeatedly) off the top of my house during the night. Pain is so hard to explain sometimes because everyone experiences it differently. But, today's pain and yesterday's pain are always different. Yesterday, my pain lasted for hours before my medicine started to even make a dent in it. Fortunately, today it only took a couple of hours and relief began to kick in. Pain today was mostly in my shoulders (probably from falling asleep in the recliner with a toddler last night) but my muscles are so sore, almost like I ran a race in my dreams.
     Another big feat of mine, recently, is trying to enter the dating world. I never entered it to begin with before I got married, and now that I'm getting divorced, I am so scared that nobody will understand what it is that I go through. On the outside, it is so easy to see a shell of a woman who looks like all the other 26 year old women out there, but keeping this body going and forcing it to get up and actually DO something is often a major undertaking. How do you explain that to a man? How do you help them to understand that it isn't just the 'damsel in distress' act when I ask for help opening the pickle jar? Well, I guess this will play out on it's own, huh?
    So much for sex and the city, more like pain meds and the city! Or would it be sex and the pain meds? Who knows! Guess we shall see.... If I ever get a date lol
     Getting through this kind of pain is so much easier said than done; there are days that I will feel decent and it only takes a little over an hour to get ready to head out the door. Even then, though, putting on makeup and getting my hair done is a job in itself, usually leaving me tired and out of breath. I have to prepare for tonight, though, when family is planning to go to the usual 'Old Bethleham' thing for the kids. Cold. Wet. Rainy. Joy!

No comments:

Post a Comment