About Me

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I am 26 years old and I have dealt with systemic lupus/scleroderma since I was 12 years old (that was my date of diagnosis, but I was sick much longer). I try to use my skills of writing and other artistic ventures to spread the word about chronic pain and what it's like to be really sick- and not look like it at all! From the outside, I look like any other single, young mother. Trendy clothes, makeup, frazzled nerves, and usually a cup of coffee in one hand and my toddlers grip on the other hand! But, on the inside, under all the fashionable fixings, it is a whole different story! This blog is my chance to tell that story, show the pictures, and hopefully help others to not be so quick to judge.
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Tuesday, December 15, 2009

What's up on 12-15-09

Well, I have missed a couple of days, obviously. I had my regular surgery (dilation of the esophagus) which is what enables me to eat soft foods. I do this every two weeks and I am currently TIRED OF IT! I have to go in, get put under, have a tube pluse balloon shoved down my throat and inflated as far as they can get it just to stretch it enough to be able to eat a little bit. The effects of it are: extremely sore for about 3 or 4 days, soreness wears off so I can eat soft things for a few days, and by the time I have gotten used to being able to swallow a few bits of noodles, the darn thing has closed back up again! Frustrating! My pain level today is pretty high, probably about a 7 because of the surgery. I woke up this morning achy all over and craving my heating pad and some hot chocolate. Unfortunately, all I had was the heating pad! But, alas, pain meds have begun to work (4 hours later!) and I am finally holding my head upright without wanting to cry. Hopefully, today will be an alright day. If I had the energy, I would get up and clean but that would undo the work of the pain meds and I would be back at square one. Lets see where the pain takes me today...

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